Join LaTonya Wilkins in this enlightening episode of the Leading Below the Surface podcast as she explores the crucial role of caregiving in today’s society. Featuring expert insights from Kate Washington, author of “Toast: Caregiving and Burnout in America,” this discussion delves into the evolving terminology surrounding caregiving, the emotional and practical challenges caregivers face, and the importance of support systems in the workplace. Discover innovative strategies for fostering a supportive workplace culture, recognizing diverse family structures, and advocating for inclusive caregiving policies. Whether you’re a caregiver or an employer, this episode provides valuable insights to enhance well-being and promote resilience in caregiving roles. Tune in for an inspiring conversation that champions the power of community and connection in caregiving!
Quotes:
Kate Washington: – There are studies that show that even when men are involved in caregiving, they are tending to do much more of the lighter lift tasks, whereas women are doing the physical hands-on care.
Context: Kate presents statistics on gender roles in caregiving, revealing the disproportionate burden placed on women for more demanding caregiving tasks.
Kate Washington: – There is a real need for community-based caregiving models. We can look to people who might be single and aging in place or like living in co-housing communities or seeing their chosen family instead of their family of origin.
Context: Kate discusses the potential for community-based caregiving models that can alleviate the burden on traditional family structures.
Resources from today’s episode:
You can learn more about Kate: https://www.kawashington.com/index.html
Learn more about the Change Coaches Coaching Sprint by emailing [email protected]
–Change Coaches Guide to Create Psychological Safe Conversations Across Differences
Transcript:
00:00:00 – LaTonya Wilkins Are you wanting to close the year out strong? Our Change Coaches offerings include retreat facilitation and leadership accelerators. Check out changecoaches.io for more information or email us at [email protected] to find out how we can support you and your organization in 2024 and beyond.
00:00:21 – LaTonya Wilkins Are you looking to navigate 2025 with clarity and vision? Look no further than our 60-day Change Coaches coaching sprint, Thriving Through Resilience. This sprint features valuable components. You’ll have three one-on-one coaching sessions with me through January and February, along with one 20-minute laser coaching session for any immediate concerns. You’ll also have access to community events and our resource library. Learn more in the show notes and sign up. Hope to see some of you there.
00:00:57 – LaTonya Wilkins Welcome to the Leading Below the Surface podcast, where we explore how to navigate and thrive in today’s changing workplace. I’m your host, LaTonya Wilkins, Executive Coach, Founder and CEO of Change Coaches, and Author of Leading Below the Surface. Today’s topic is caregiving, which has likely touched us all in some way.
00:01:26 – LaTonya Wilkins Many of you know I have experienced significant loss and participated in caregiving. The term caregiving has evolved for me; I previously thought of it as caretaking. We will discuss this evolution. Additionally, organizations could do more to support caregivers, especially regarding various family situations. This support could take the form of DEIB, Leading Below the Surface, or wellness programs. We all can do more. I hope everyone listening today is willing to take action. Now, let me introduce our guest, Kate. We’ve known each other through mutual connections for a couple of years. As fellow authors, our friends have encouraged us to connect. When we finally got in contact, I wanted to have you on my podcast. Kate also just got a new book deal, so I’d love to celebrate that. She’ll tell you a little about it. Kate, did I miss anything? Oh, one other thing, her book, Toast, is behind her if you’re watching us on YouTube. It’s about caregiving and burnout.
00:02:49 – Kate Washington What did I miss, Kate?
00:02:54 – Kate Washington I’m working on a new book called Watersheds. It is a personal story that follows Caregiving and Burnout because I felt very much like Toast at the end of the period I wrote about in my first book. I’d love to discuss caregiving, caretaking, and why it can lead to burnout, as well as what employers can do. The new book is about a challenge I set for myself when I was about to turn 50 and felt stagnant at midlife.
00:03:25 – Kate Washington I decided to visit 50 different swimming holes in California, where I grew up. It reignited my creativity and brought me joy. For the first time in many years, I was doing something solely for myself.
00:03:50 – Kate Washington It led me to change my approach to life.
00:03:55 – LaTonya Wilkins How far along are you with this book?
00:03:59 – Kate Washington I sold it from a book proposal and have written a couple of chapters along with a detailed outline. I also kept a blog of all the swimming holes I visited, so I have raw material to work with. The next step is to turn that material into a coherent story.
00:04:22 – LaTonya Wilkins This sounds like a fun book to write. You must be excited about it.
00:04:26 – Kate Washington I hope so. It’s gray and rainy where I am, so writing this book will remind me of summer and whetting my appetite for swimming when warm weather returns.
00:04:39 – LaTonya Wilkins We’ll provide more information on how to find Kate and follow her as her new book comes out, as well as about Toast. Now, let’s get to the topic.
00:04:48 – LaTonya Wilkins When did the term caregiving become preferred over caretaking, and is there a difference between the two?
00:05:02 – Kate Washington I haven’t examined the exact time, but I think it became more common in the 70s and 80s. Caregiving refers to unpaid family caregiving for the ill, elderly, or those needing extra support. The term has also been applied to parenting and caregiving for children, which creates some confusion.
00:05:31 – Kate Washington I considered this while writing the book. Caretaking sounds more like managing a large estate. I have a background in Victorian literature, and caretaking seems less human. However, I recognize that the term is still used. Many people only become aware of caregiving when they face that need in their family or friend group.
00:06:13 – Kate Washington Recognizing caregiving as a role is the first step toward providing the necessary support. I didn’t see myself as a caregiver until I was deep into the experience. There are many tasks associated with caregiving, especially in severe illness or ongoing decline, like dementia. People often overlook these tasks because they are not hands-on care, such as managing finances or health insurance. It’s important to highlight the lack of awareness of the term until one is in the situation.
00:07:05 – LaTonya Wilkins I’d love to hear your caregiving story in a minute. It’s interesting that you didn’t think of yourself as a caregiver.
00:07:17 – LaTonya Wilkins When my mom passed away in 2014, I was in my early 30s. I didn’t see myself that way either because I wasn’t with her every day; she was living in Iowa.
00:07:40 – LaTonya Wilkins I realized how that term clicked with me. I was her emotional support as she went through everything, which I never thought of that way. I thought of it as the nurse coming in and being hands-on. But there’s this whole emotional piece that comes with that. I’d love to know your caregiving story and if that was part of yours as well.
00:08:04 – Kate Washington It’s interesting that you point out long-distance caregiving is increasing as families have scattered. It’s real and demanding. Many listeners have experienced that because it’s hard to keep track of things from far away while managing your own life. Another thing about the term you mentioned is that there’s also a slippage with paid caregivers and in-home care support people.
00:08:34 – Kate Washington The term caregiver can mean different things. In my caregiving story, I was not a long-distance caregiver. I cared for my husband, who is now divorced. This was in 2015 and 2016.
00:08:49 – Kate Washington He went through a very acute bout with lymphoma, a blood cancer, and a bone marrow transplant, where he was hospitalized for four and a half months. We had young kids, nine and five, when he was diagnosed. I was also managing the home front with them. During his bone marrow transplant, he lost his vision, the ability to walk, and the ability to eat. He was very close to dying.
00:09:16 – Kate Washington It was incredibly stressful. Two to three years of acute illness. In some ways, it sneaked up on us and on me as a caregiver because there was a long process to diagnosis. Even though his cancer was aggressive, it wasn’t clear that it would need treatment or what to do because it was rare. I provided emotional support as his spouse, called the Leukemia and Lymphoma Society, found peer-reviewed articles, talked to doctors, and coordinated health insurance and denied claims.
00:09:58 – Kate Washington I didn’t think of caregiving until he had a crisis and was admitted to the hospital. It became a full-time commitment, with constant trips to the hospital and picking up the kids from aftercare. For a couple of years, it consumed me, and I couldn’t work. I’m a freelance writer, so I had to set aside work and dip into savings because if I don’t work, I don’t make money.
00:10:30 – Kate Washington Fortunately, he was a university professor with great benefits. The variability of benefits in our health system can significantly impact families during care and illness crises. There are many layers to this experience. I couldn’t think about writing a story or billing for it while managing everything.
00:11:08 – Kate Washington Getting up, going to work, and racing to the hospital is a tough road for caregivers.
00:11:17 – LaTonya Wilkins It’s interesting that you are a freelancer and still couldn’t work. My mom had heart disease, and I didn’t know about it as a child. Family members helped take care of us. In the end, I was in denial, thinking she would be okay. I remember having to leave for weekend trips as it became harder. When she passed away, I wasn’t expecting it. My employer wasn’t supportive during that time. I also lost my sister suddenly when I was young, working my first job at a business school. My workplace wasn’t understanding, and I struggled with caregiving for myself during that time.
00:12:33 – LaTonya Wilkins Let’s talk about this. You mentioned your husband has good benefits. Why do you think caregiving isn’t recognized in the workplace?
00:12:44 – Kate Washington There are many reasons for this. One is that we are expected to be our professional selves and set aside family responsibilities in the workplace. The American workplace and other cultures often emphasize individualism, where families are expected to manage on their own. The prevailing mindset focuses on the nuclear family rather than extended family support networks.
00:13:20 – Kate Washington Problems are often kept behind closed doors, and people tend to be stoic. The pandemic exposed this issue, as we could not hide the chaos in our homes while working. There is a significant separation between home and the workplace. In a society without mandated paid family leave, we are limited to unpaid family leave in a few states, which lacks flexibility.
00:13:53 – Kate Washington It is up to individual employers to provide support. Many employers focus on the bottom line regarding unpaid family leave and overlook the larger picture. Supporting employees as whole individuals can lead to better work, increased loyalty, and longer-term relationships with valuable employees. Caregiving is often unpredictable; for example, you might need to take an afternoon to take a family member to a doctor’s appointment rather than taking a full day or a 12-week leave. The leave is often limited to specific family members.
00:14:37 – Kate Washington There is often a lack of flexibility to adapt to unpredictable caregiving situations. Many factors affect caregivers. Statistics on caregiving are available, including an AARP report released every five years. A new report is expected in 2025, but the 2021 report indicated that there are 53 million caregivers in the US, which includes adults caring for other adults.
00:15:12 – Kate Washington A significant portion of the workforce consists of people in their earning years, including many seniors caring for each other. A high percentage of people are both working and caregiving. I forget the exact statistic on the number of people in the workplace with care responsibilities, but it’s shocking that 70% of caregivers do not disclose their caregiving roles at work.
00:15:45 – LaTonya Wilkins That’s a telling point. The individualist culture discourages revealing caregiving responsibilities as it may be perceived as a weakness. People fear being seen as unable to perform their jobs, which I experienced in my job.
00:16:10 – LaTonya Wilkins After losing my sister, I hesitated to take time off, even though I had the time available. Many companies discourage taking time off, similar to unlimited PTO, where people are reluctant to use it. The statistic of 70% raises questions about what people are concealing.
00:16:33 – LaTonya Wilkins It seems that women and people of color are shouldering more caregiving responsibilities. I have two brothers, but I provided most of the emotional support. One brother handled more of the tactical aspects, which is valuable, but I wonder if the majority of caregiving falls on women and people of color.
00:17:06 – Kate Washington Your experience reflects the statistics. Studies show that even when men participate in caregiving, they often handle lighter tasks, while women perform more physical care. Women are more likely to assist elders with toileting, shower-ing, and wound care. There is a higher burden of physical tasks on women. Reliable statistics indicate that 61% to 75% of serious caregiving is done by women, depending on the study.
00:17:57 – Kate Washington Women of color disproportionately engage in caregiving and enter this role at a younger age on average. Younger employees are more likely to be involved in caregiving compared to their white counterparts, especially white males. Employers interested in DEI and retaining excellent employees, particularly women or women of color, need to consider how to support these employees facing different and greater pressures.
00:18:47 – LaTonya Wilkins It’s interesting how this compounds with workplace oppression and the expectations placed on women to care for others, especially women of color.
00:19:04 – LaTonya Wilkins I read an article discussing how many organizations are revamping their EAP programs due to low usage and inadequate support for employees. Some of my coaching clients have struggled to find effective coaches or therapists through their EAP. I have been exploring novel services like concierge care coaches. Are these gaining traction in the workplace, or what other innovative benefits are emerging around caregiving?
00:19:47 – Kate Washington There have been significant efforts in this emerging space since my book came out in 2021. Many startups are trying to scale care, which is inherently individual. One notable company is Inicare, which offers a multifaceted benefits package for employers, including platforms for caregivers, health providers, and employers. It is an app-based service that helps marshal support.
00:20:34 – Kate Washington Many concierge and care services are emerging. The future of caregiving involves assistance in finding and sourcing care. It can be challenging to navigate the marketplace for in-home care or facilities for loved ones, especially during times of crisis or urgent needs.
00:21:02 – Kate Washington The challenge with using concierge and coaching services is ensuring they are equitable due to their cost. Employers may not have these resources readily available, but exploring creative ways to offer care-related benefits to employees is important. There is an emerging marketplace that HR departments could consider.
00:21:35 – LaTonya Wilkins It seems these ideas may not be as novel as I thought. I often discuss below the surface leadership. How can we lead and support others until they feel comfortable opening up? This concept remains largely in my head.
00:21:57 – LaTonya Wilkins I intended to ask about alleviating burnout, which I believe relates to not being able to be oneself, leaving personal problems at home, and trying to overbalance everything. What can we do to foster open conversations with caregivers and support them at work?
00:22:21 – Kate Washington This issue relates to culture change, not just in the workplace but in society. We need to talk more openly about caregiving. Leaders should address these challenges publicly. Rosalind Carter, the late former first lady, founded a caregiving institute and highlighted that everyone falls into one of four categories: caregivers, those who will be caregivers, those who will need caregivers, and another related category. This illustrates that even those in leadership roles face caregiving challenges. Keeping these issues hidden promotes a culture of silence about being human. Caring for each other is a fundamental aspect of humanity. I’m not suggesting we disclose every detail at work.
00:23:50 – Kate Washington However, we should create an open atmosphere where we can bring our whole selves to the workplace. It should not be taboo to discuss the struggles of being a caregiver; this is a crucial first step.
00:24:08 – LaTonya Wilkins I think what you’re saying is to paraphrase, lead by example, and talk about your own weaknesses. We discuss psychological safety, and sharing a weakness or failure creates immediate psychological safety because it shows you’re not perfect. Can people start with culture change by opening up on their team?
00:24:36 – Kate Washington Yes, exactly. Sharing a challenge doesn’t have to be a failure or struggle. It creates an open atmosphere and allows team members to feel safe in adopting the same approach.
00:24:55 – LaTonya Wilkins I was with a friend last night, a coach. We’ve known each other for a couple of years, but our friendship has been work-based. Last night, she shared her story of loss.
00:25:13 – LaTonya Wilkins This relates to what you said because I’ve been open about it. When you are, it shows people that it’s okay. I once had a boss who lost their spouse to cancer and was public about it.
00:25:32 – LaTonya Wilkins They took time off work and ensured everything was good. This helped us know that if something happens, we’re okay. It’s great to work for a boss like that, who you see going through something difficult but taking the space to handle it.
00:25:53 – Kate Washington Times of grief and loss are powerful moments where leaders can show vulnerability. I’m thinking of your story about not feeling you could take the time you needed after your sister’s loss. It might have been different if you’d been in a workplace with that boss who modeled that for you.
00:26:15 – LaTonya Wilkins Right. At that time, I knew someone who was judged because her husband was very sick. She had to leave due to her erratic schedule, and they were upset about that.
00:26:31 – LaTonya Wilkins You’re right; it’s a big difference.
00:26:37 – LaTonya Wilkins All of us can strive to do that. When I talk about leaving below the surface, we don’t have to change the entire OR culture. It’s our team culture and the relational leadership we practice. We can make it psychologically safe to discuss these topics.
00:26:55 – LaTonya Wilkins Some of you listening, who are deep in DEI or are DEI practitioners, may notice we are discussing traditional concepts. We talk about gender, mentioning man and woman, and focus on binaries. This is something I consider when thinking about caregiving.
00:27:20 – LaTonya Wilkins Many people might feel left out. For example, if you’re queer, have a different type of relationship, or don’t have children, you may not feel recognized. There has been more work around parents, and while it’s not perfect, those without children who need to care for something may not receive the same acknowledgment.
00:27:47 – LaTonya Wilkins If your child gets sick, for instance, and you’re single with no kids, but your dog gets sick, the response is different. If you have kids and your child has a cold, you can take the day off, and others will relate to that experience. This raises another question: how can we be more open to different family structures? Leaders often have traditional views, focusing on parents with aging parents or a sick spouse.
00:28:25 – LaTonya Wilkins But what if you don’t fit into those boxes?
00:28:29 – Kate Washington That’s a great question. It’s important to look at the full spectrum of experience. I briefly discussed this in my book and wish I had explored it more. We can learn from the queer community and other groups about caregiving and recognizing alternative and chosen family structures. Many models of care emerged from the AIDS crisis in the 80s when individuals were estranged from their families of origin.
00:29:14 – Kate Washington Networks of friends and groups came together to care for each other. This approach is beautiful and valid. We need to view it as a society because traditional one-on-one caregiving, such as caring for a parent with Alzheimer’s, is not sustainable. Caregivers are overwhelmed and often have multiple care obligations within a family. If we consider networks of care, we can support people who are single and aging in place, living in co-housing communities, or relying on their chosen family instead of their family of origin. This approach distributes the caregiving load, allowing one person to help on Tuesday and another on Wednesday, which lightens the burden and fosters strong connections for everyone, including the care recipient.
00:30:17 – Kate Washington Caregivers often feel they know how to provide care and struggle to let go, leading to burnout. We can find ways to encourage more participation from siblings, as one sibling often takes the lead while others do not step up. Exploring networks of care outside traditional nuclear family structures offers promising solutions.
00:30:52 – Kate Washington I hope employers and the larger culture will validate these relationships. A recent book by Reina Cohen discusses friendship as a cornerstone of life, which I find interesting. Many people are exploring how to move beyond insular living arrangements typical of the 1950s suburban nuclear family model.
00:31:31 – Kate Washington I believe the future of sustainable caregiving lies in these new approaches.
00:31:37 – LaTonya Wilkins I resonate with the idea of networks of care. I think this is the future, where people have chosen family structures that include different ages and types of care.
00:32:00 – LaTonya Wilkins It’s not just the nursing care. It’s about having children, older people, or friends around. I find that interesting. Do you think we’ll see more of that? I think it’s going to catch on.
00:32:23 – LaTonya Wilkins Do you think traditional people would be open to this? I see different ways to get health insurance and coverage, like subscription models. The caregiving industry seems right for disruption, as does senior living.
00:32:48 – Kate Washington I agree. There are models emerging. You mentioned whether traditional people can accept this. Churches and church groups already do this by providing support, like bringing casseroles when someone is sick. We see models of connectedness in traditional cultures, as communities had to support each other.
00:33:27 – Kate Washington We’re social animals who need to care for each other. Every human is born needing intensive care, and most of us need care throughout our lives. The current way of caregiving in America is a historical anomaly, stemming from the individualized suburban model of the 50s that many cling to.
00:34:07 – Kate Washington This model isn’t working for most families, not just in caregiving. We are in a chaotic cultural moment, and the healthcare industry is facing crises.
00:34:26 – Kate Washington The way forward must focus on togetherness and openness, relying on each other.
00:34:36 – LaTonya Wilkins You made a good point. I visited a family member this weekend, and we discussed how church structures have evolved to be more inclusive. For those who think our discussion is too futuristic, I understand the skepticism.
00:35:04 – LaTonya Wilkins You’re right. It’s been ongoing, and I think younger generations want to be with people they love rather than out of obligation.
00:35:19 – LaTonya Wilkins Anything else you want to add on caregiving before we close with how we can find you?
00:35:28 – Kate Washington My book, “Toast: Caregiving and Burnout in America” by Kate Washington, is widely available. You can find my website, which may be included in the show notes, and I’m active on social media, especially LinkedIn. I enjoy hearing from readers. We discussed earlier how many people don’t recognize caregiving as a role.
00:35:57 – Kate Washington One meaningful aspect of my book is receiving emails from people who found me through my website and the book. They express that they didn’t realize others experienced similar feelings and challenges as caregivers, and they felt more seen and validated by my writing. That means a lot to me. I invite anyone to reach out.
00:36:27 – LaTonya Wilkins Great. Definitely reach out. I read your book and plan to read it again, especially with aging relatives on my mind. Thank you everyone for listening today. If you liked what you heard, please leave us a review on Apple, Spotify, or YouTube.
00:36:46 – LaTonya Wilkins Thank you, and we’ll see you next time.